Trying Times

I know we haven't been in touch with many of you since we came home from the hospital but there have been some new developments with Cailyn.

Starting on Wednesday night she started having some weird twitching and eye movements along with her arms and legs pumping up and down. Over the next two days it just got more intense and more frequent.

We went to the pediatrician and she had an episode in his office so he sent us to DC to the Children's Hospital Emergency Room. After many hours and many tests they admitted us to the Pediatric Neurology floor of the hospital.

Since yesterday she's been on an EEG measuring her brain waves. It's hooked up to video too so they have determined she's having seizures. They started her on some medicine to stop the seizures and she hasn't had another one since 10:30 this morning so that's good, but the medicine makes her really sleepy so she hasn't been awake much today.

Tomorrow they will do an MRI to try to help determine why she is having seizures and seem to think we'll be able to control it using medicine. We may get out of the hospital tomorrow or Tuesday but maybe not until Wednesday.

My parents are still in town and will probably stay through the weekend. Its a bit hard to talk about most of this on the phone so we appreciate your thoughts and prayers and will send out updates when we find out more information. The hardest part is not knowing. We've been reassured she's not in any pain and won't remember any of the tests or anything.

Curt and I have been staying in the hospital with her and the staff has been really good to us.