I hate to post this because I know everyone is as hopeful as we are but Cailyn is back in the hospital and is going to be here at least a few days. She had a huge amount of seizures on Friday and was extremely lethargic, like a ragdoll, so we came back to the ER and they admitted her. They think she's dehydrated so she's getting IV fluids and is going to be here a "few days." Her blood sugar is really weird. It's low sometimes so they give her Orange Juice to bring it up and it went down lower. They are supposed to do IV without sugar and have been doing that for the diet and the severe sugar restrictions and she's getting further dehydrated and her blood sugar actually went up significanctly. So basically what they do standard to raise blood sugar lowers hers and what they do to lower blood sugar raises hers. There has to be something else going on besides just the Epilepsy. So we are in the right place to figure this out.
Grandma and Grandpa are here hanging out and Daddy and Cailyn are sleeping. I'll stay with her tonight and Grandma and Grandpa will bring back my laptop so I can work from the hospital. Daddy has to go to the office. We don't know how long she'll be here once again.
On another note, last night in the ER the 3 year old kid next to Cailyn was in because he got run over by a golf cart. He was having eye surgery this morning.
It's always something. I'll try to give people a call back but its hard telling the story over again especially since we have no answers.
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