Saturday, April 23, 2016

The end of week 5

Cailyn is doing great. No bad side effects. Seems to be a reduction in length of seizures but they are still coming. The biggest change Grandma, Grandpa and her pediatrician noticed has been an increase in alertness. We had a delay on lab results to test levels of seizure meds in her blood but once we get that back we'll increase the dose of CBD, probably doubling it. Then we'll probably stay there 2-3 months, test blood and then maybe lower one of her prescriptions. I'd love to get her down to one RX seizure med and the CBD oil. 

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