So Cailyn started having more episodes on Tuesday night.
From what we've described to the doctors they now think it could be a form of epilepsy called Infantile Spasms. We are going to do more tests and I'm going to push to put her back on the medicine we just got off of--Topamax. It seemed to be working for a while and we just got off of that this week.
Depending on a new batch of tests we'll do tomorrow or next week will determine if she'll go back in the hospital to get started on a new injection drug that they'll need to get the right levels and we'll have to learn how to give her injections.
So we still don't have too many answers and we are just trying to keep Cailyn comfortable and happy.
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