Wow what a week its been. Cailyn is still in the hospital. They tried to restart her on the keto diet but it's just not working. Her blood sugar was too low, she was having way more seizures and really sick looking. She's lost a pound and a half and could fit back into size 2 diapers. They've decided two times is all they'll try and that now we'll do steroids for 6 weeks. They say its 75% success rate for stopping the Infantile Spasms. They are also consulting a metabollic specialist because they aren't sure yet what's going on but there is something metabollically that is probably causing her epilepsy. So more investigations to come. She's on IV and her regular formula so I'm hoping tomorrow she'll perk up. I'm home tonight, only the third time in 2 weeks, and Curt is taking tonight's shift. Still not sure when she'll be home, maybe Saturday but hopefully no later than Sunday.
Have a good night.
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