Last weekend was really busy. My long time friend Linda and her girlfriend Nikki came into town and I spent 3 days commuting into the city for fun times.
Friday Cailyn and I met everyone for lunch, went to the Natural History Museum and then dinner. Saturday I went back into town for a girls night on the town. Sunday Cailyn and I went in and went to the Rolling Thunder Memorial Day Motorcycly ride, Air and Space Museum and then the Memorial Day concert that airs on PBS then the Thomas Jefferson Memorial. Lots of fun and lots of late nights. Curt has lots of work to do until July 20 so he didn't get to join us.
This weekend we'll hit the Herndon Festival and possibly Relay for Life event.
Cailyn's been ok. Lots of big bad seizures and meds changes. We head back to the neurologist in two weeks and we'll probably add another med into the mix.
One interesting thing I heard today from Cailyn's PT is that she has another patient with lots of stomach issues and seizures. She's 5 now and they started seeing a new doctor who diagnosed her with a staph infection. They are treating the infection and it's been 3 months since she's had a seizure. Her PT is going to get me the contact info for the doc. I'm willing to try almost anything.
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