... until baby girl Reese two (BGR2) joins us. My c-section is scheduled for Thursday Feb. 2. Grandma will come in Feb. 1 and hopefully BGR2 will wait until the second to join us. I believe Aunt Danielle will be super stressed out if she doesn't wait until the 2nd :-).
Yesterday was my first day of maternity leave. With Cailyn I worked until the day before I went in to the hospital but this time I am tired. I am glad I wrapped up work early and am taking some time before BGR2 gets here. I am very lucky with work and won't return until the first week of May--15 weeks, almost 4 months off.
This week I'm tending to some much needed maintenance on many fronts: oil change in the van, pedicures for me, Otis and Elvis and haircuts for me and Miss K.
Today we had a semi-emergency come up as a wheel fell off Cailyn's wheelchair in the parking lot of therapy. Our new caretaker Katherine was with me so she took Cailyn out of the chair and carried her to the van, and I pushed it on 3 wheels the rest of the way. Curt will take a look and can hopefully fix it. If not I'll have to drive her to school and bring a stroller because she can't ride on the bus without her wheelchair--it serves as her car seat too.
So now meeting up with the repair guy will be added to my to do list along with 2 more doctors appointments this week, two therapy sessions for Cailyn and finishing up phone calls and making copies for insurance paperwork and reimbursements.
This weekend I'm hoping to have a big cooking session and make a few casseroles to freeze and eat after BGR2 is here. I doubt I will have much time afterwards. I picked out the recipes and made a shopping list so hopefully we'll get to the grocery store and I can cook, cook, cook on Sunday.
The only other news really is how bad Cailyn's seizures have been lately. Since about the beginning of December, we've increased her medicine twice and she's still having bad startle seizures and just some yucky episodes. This all effects her sleep and her schedule.
An example, she slept until 11 at school today, woke up to eat lunch and then get on the bus and came home. She did have a really good PT session this afternoon so hopefully this will get better soon. Her neurologist said we are probably going to have to talk about adding in a third medication again, but not sure which one. She's on Keppra and Depakote right now. We see him again Feb. 21.
I've been investigating adding coconut oil to her diet. I've seen a few posts by special needs Moms that it's helped their kids and honestly it can't hurt. She likes coconut, she's currently eating coconut yogurt almost daily, and it would add about 300 calories to her daily intake, which would help get some more meat on her bones. I'm in no way implying it will take the place of her meds but even if it helps a little it's worth trying.
On another medical front. I've talking with Cailyn's pediatrician and she's gotten everything in order so two weeks after BGR2 is born, we can get her blood and send it to TX to be tested and make sure she doesn't have the same genetic neurotransmitter protein anomaly as Cailyn. It's less than 1% chance that she does but I'd rather test her and be sure, rather than sit around and stare at her wondering if today is the day she'll have her first seizure. Our favorite ped, Dr. Carroll will be doing rounds at the hospital after BGR2 is born so it will be great to see a familiar face, who is very familiar with Cailyn's history.
Fingers crossed BGR2 is healthy, eats well and has NO SEIZURES. I want a very boring maternity leave with NO extra hospital stays.
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