So on Wednesday Cailyn had her 3rd endoscopy to see if her infection/allergic reaction to food has cleared up and her esophagus is free of white blood cells. Good News--it's all clear and looks like a healthy esophagus. Also good news we were able to stop the steroids today, which were supposed to help the food allergies but we believe have been the culprit behind her severe increase in seizures. We have a followup appointment at clinic on the 12th and we'll get the biopsy results and discuss next steps.
We also took Cailyn to the best playground around this week and she got to ride "her swing".
She's gotten so big. This picture is from one of her first times on "her swing" in 2009. Not sure why she likes to cross that leg and bring it up on the swing.
This is a great new swing they have. You put her wheelchair right on it and it locks in place. I think she might like this swing the best because she's sitting so comfortably and not so slumped like in the other swings. It's pretty cool. We got our own key for the swing so we can use it whenever we head over to the park.
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